A-T STORIES

Action for A-T uses the money it raises to fund vital research into the rare childhood condition Ataxia Telangiectaisa. Click on one of the links below to read the heartbreaking stories of the families who look to us for hope.

Baby Girl Image

Our Story

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Our wonderful daughter was recently diagnosed with A-T at just 21 months old. We didn’t think that anything was wrong before she was about 14 months. Then we noticed that her back and head seemed more unstable than normal. Initially, she started some physical exercise as we hoped that this type of training would help with the unsteadiness. […]

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The Boys

The Boys’ Story

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We have 4 exceptionally wonderful children. Our twin boys were diagnosed with A-T over 5 years ago. To say it came as a shock is an understatement. Apart from their balance not being quite right, they hit every developmental milestone in their early childhood so we were not expecting a serious diagnosis at all. I […]

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Jenni’s Story

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Jenni’s Story- Update April 2016 Very sadly, our darling daughter Jenni passed away on 7th January 2016. Like so many other children with A-T, she was diagnosed with cancer (Non-Hodgkinson’s Lymphoma of the Liver), in August 2015. She was fiercely determined to live, so I spent many weeks over the next 5 months in Alder […]

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