A-T STORIES

Action for A-T uses the money it raises to fund vital research into the rare childhood condition Ataxia Telangiectaisa. Click on one of the links below to read the heartbreaking stories of the families who look to us for hope.

Lilly and Snowey

Lilly’s Story

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Lilly was born by planned C section in May of 2009 and was a healthy normal baby. There were no complications during birth. From birth to two years old everything seemed perfectly normal, we had no reason to suspect hard times were upon the horizon. Lilly took her first steps at 10 and a half […]

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Tilly

Tilla and Ines’ Story

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Tilla (aged 7) is a funny, caring and beautiful Danish girl, with many friends who lives in a refurbished, old factory building in Copenhagen, Denmark with her little sister, mom and dad. She collects scraps, dries flowers and loves to dress up and play with her many girl friends. Tilla was almost 6 when we […]

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